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Showing posts from 2013

The end of another year...

Its the end of an emotional, turbulent, difficult, challenging & hopeful year...so much has happened both for better and worse..
At the beginning of the year we were all excited with Roo doing so well in his development...he was learning to walk, becoming more and more confident, he started at his sn nursery and settled really well in there, he was taking more of an interest in trying to sign, trying to communicate, took a huge interest in music and thrived on it by learning to hum along to many different tunes and dancing in Roo style!!
But as the year has gone by we have had to face a lot more challenges than before - Roo behaviour changing, sensory issues getting worse, struggling to cope with changes...we had to abandon our family summer holiday as Roo was struggling to deal with the change of environment, spending all day screaming and in distress...
We have had some health issues with his bowels which is being investigated, on meds for reflux, meds for sleeping, eyes gettin…

Results of Sensory Advent Calendar

As you will have read in previous post I have done the Sensory advent calendar with Roo and have a photo log of the 24 days of advent which will be shown below...We ended up changing the list I had made up due to days of appointments or Roo moods so some things weren't done and replaced with other things...I will keep the ones we didn't manage to do for next Christmas! 
Day 1 - Tinsel .....I suspected that this would be something that Roo would dislike as I remember last Christmas he screamed if he touched it...this time he was laying on the floor and I just put some tinsel around him and immediately he started whining filled by crying while trying to get rid of the tinsel! I quickly took a photo and then removed the tinsel before he got too distressed! 

Day 2 - Christmas lights...Roo pulled an all nighter this night so this was done in the middle of the night! He loved just chilling on the sofa watching the penguin, robin and snowman change colours..very relaxing..
Day 3 - C…

Sleeping ...

As I lay beside you, Watching you fall asleep I look at your face, Taking in every feature Planting it in my memories forever. I gaze at your head And wish I could look into your dreams.. Are you dreaming of a land full of music? Where you can bang the drums as loud as you can Or make as much noise with the keyboard as you can Humming along to the many tunes you know? Maybe you are dreaming of playing in the water Splashing with glee for as long as you want?  I always wish I could have a glimpse of your dreams To give me some idea what goes on in your mind... Sleep is not something that comes naturally to you It's one of your issues as you wake often, Toss and turn all night long So every time you close your eyes  I'm grateful for the rest your body desperately needs (And relish those moments of peace! ) I will always watch over you while you sleep, Making sure no harm comes to you.. Before I go to bed every night I creep into your room Kiss your soft cheeks and whisper "I love you" ....





Great times!

I am always trying to focus on the positives as professionals tend to always seem to focus on the negatives or find other issues/problems/concerns so thought it was time to tell you all about those last few weeks where he just seemed to have come on loads!
I think I will just write it as a list as its much easier!
He can work his iPad a lot better! He knows now that he can put his fingers on the screen and swipe it to move to the next page and then using 1 or 2 fingers he can now click on what application he wants!When playing with an application on the iPad he sometimes accidently switches it off so he now taps me to make me look at the iPad and put it back on for him! Before he would just lose interest if he switched it off and do something else...He is becoming more vocal, trying to say words and before only me and Warren could understand what he was trying to say as we were saying it before hand but others couldnt...now his nursery have told us that they are starting to be able to…

Sensory Calendar

This Christmas will be Roo's fourth Christmas and while I love to say that he is excited about it all , the reality is he still doesn't understand...to him it's just another day. I always find myself feeling sad at this time of the year when I see his brothers and other children of the same age as Roo get all excited about the Christmas season, visiting Santa, asking for certain toys, looking forward to the opening of the advent calendars...
Last year we got Roo his first chocolate calendar and he just didn't get it...some days he even refused the chocolate..he just wasn't interested. This year I've decided that we are going to do something different..last year one of the Swan mum's did a sensory calendar for her little boy, Freddie, and I absolutely loved seeing the daily photos of Freddie experiencing different sensory things related to Christmas! So this is what I will be doing with Roo and I hope by doing this it may help him to understand a bit more a…

Blow me a kiss...

Just wanted to share a special moment that happened today!

We were early arriving at the nursery as we were at an appointment for Roo so we just sat in the car while Roo finished off a snack...he was in good spirits, hyper and excited when he saw Daddy getting out of the car to get him out of his car seat... 
As he stood on the pavement holding Daddy hand he was all hyper and excited as he could see me through the window so I rolled the window down and said "bye bye" and he just looked at me so I then said "Mummy is blowing you a kiss" and he watched me do the blowing kiss motion and then to my astonishment he tried to copy by putting his hand to his mouth and then down...I squealed in excitement and when Roo saw my delight he smiled his biggest smile and started flapping!
OK, he didn't understand the significance, according to him he was just copying a gesture without understanding the meaning but he BLEW ME A KISS! This was a moment I was going to treasure f…

Another year, another birthday

When it comes to your children's birthdays you see your children as they get older get excited in the run up to their birthday, they point out what they really want, they ask if they can have a party or friend over or go somewhere for the day...you spend your time happily organising their birthday trying to fulfil their dreams/wishes and making sure they have a day to remember.. I have all this with my older two children and I really enjoy shopping for their presents, wrapping them up, watching the excitement in them esp the night before, seeing their eyes light up when they open their presents etc... I expected the same with Roo but instead I was surprised at how I felt this year...
We were at a lost what to buy Roo for his birthday this year... he still cannot communicate, doesn't understand toys so it was a struggle but eventually we settled on a musical, moving Micky Mouse, a toy guitar, Mr Tumble spotty bag with Mr Tumble toy phone, Mr Tumble tablet...all things that we t…

Autumn past & present...

It that time of the year again, where everywhere you look you can see the trees are littered with multicoloured leaves & fall to the ground..Its my favourite season of the year purely of the colours, the nights drawing in so that I can light my candles & most of all go for woodland walks with my boys... Today the whole family went to Vogrie - a local country park - for a walk through the woods as the boys were desperate to look for conkers! This year we were able to go through the forest path instead of the normal paths on the outside as we had fund raised for a Special Tomato Jogger for Roo and its perfect for country walks. It means Roo gets to experience a proper woodland walk alongside his brothers...We must have walked almost 5miles and in all that time he sat happily in his buggy, totally engrossed in his surroundings as it was so colourful. He found watching Pepper our dog running around crazy quite funny as every now and then he would let out a little giggle..I took s…

Sleep is over-rated...

Title says it all really...according to Roo sleep is over-rated...
Since Roo came into this world his relationship with sleep started off good but then they became bitter enemies...the first 4wks of his life he slept a LOT...needing to be woken up for feeds..I remember asking midwife and hv if it was normal! They told me to relish every moment and that it wouldn't last...how true were those words were to become...
Once those first blissful weeks had past we were suddenly thrown into a world of sleepless nights...no longer did he settle, instead crying many tears...everyone said it would pass, that it was just a phase but now he is nearly 3 yrs old and still has big issues with sleep..
At the beginning of this year he was put on a low dose of melatonin to help him sleep...it was amazing as it worked really well with him...we got 8 hrs sleep a night which was total bliss and more importantly Warren and I got our evenings back where we could just chill and watch tv with no disturbances.…

A letter to my other children...

This post is dedicated to Roo's two older brothers who I feel deserve a mention in this blog...I got the idea from two other blogs by - areyoukiddingney & theaandnatesmam
Dear Leo & Lucas,
As you both see this blog is all about your younger brother, the struggles and achievements of his life & raising awareness of life as an undiagnosed child...there have been many times over the past few years that you both have heard the words "he has special needs" & I want to say that you both are special too in your own unique ways...I don't want you both to think that Roo is the only "special" one...he isn't as you both are as well...
Its hard to put into words how much I love you both...you both along with your brother Roo are my miracles as you all were conceived with the help of fertility treatment so we got the family we always wanted. I feel so blessed to have you both in my life and no matter what happens you both will always have my love along…