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Showing posts from February, 2014

Every day is a different day...

We are under several professionals who each deal with a certain part of Roo life/issues & most recently we added the Disability Team to the list and one of the many questions that seem to come up regularly is "what does Roo do all day long?" ...I was asked to keep a diary over 3 days and here is the result...



Day 1 -The vibrating alarm goes off and I wake up to my brain rattling, groaning I reach over to switch it off, grab the mobile to get some light which I shine in the direction of Roo travel cot hoping that it was him just moving setting it off but instead I am greeted by his beaming smile moving up and down as he seems to think the bed is a trampoline..I check the time and to my dismay its 430am..at least its not 1am so I bring hm to my bed , plonk the ipad in front of him with Mr Bean cartoons playing...Roo has taken a liking to Mr Bean - a person I have disliked since I was a young girl...I just cant stand him but yet I find myself staring into his face every day…

Another star in the sky...

Today is an emotional day for many of the SWAN community and I have been rather emotional of late and today I keep getting all teary whenever I think of a little girl who's family are doing what no parent should ever have to do which is lay her to rest...

She was only 1 yrs old and had recently celebrated her birthday, I have not had the pleasure of meeting her but I along with all the swan community shared her journey with her family...When her mum first joined our community we all welcomed her, when she shared her story, the ups and downs we were all there together supporting her...When she went into hospital we all came together and prayed and hoped for a miracle but when we were then told that she was going to the hospice for her last few days all our hearts broke for the family....then we heard the news we hoped would never happen...she passed away...we all cried together..we all felt the loss...we all tried to find the right words to say but the truth is there is no right wo…