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Showing posts from April, 2014

The Mystery of Roo

Roo is a mystery to the medical world and always has been...as he gets older he becomes more complex and springs up more mysteries on the doctors! We are forever searching for clues that can lead to possible answers...The medical world aim to keep searching until they finally get the answer they and ourselves have longed for...But as time goes by I am starting to accept that our son may always be a mystery...we may never get answers and that's scary in many ways as it means we have no idea what the future will hold for him...So far on this journey we have come across many clues which were hopeful only to be dashed and told that the clues had come to a dead end..no one knew how to take it further or what the next step will be....
Roo has undergone many tests and even then the results are never straightforward and leaves the doctors scratching their heads and wondering why the clues aren't adding up and instead increase the mystery that is Roo... Since we started this journey w…

Tough week

Every time we end up in A&E there are always a barrage of questions thrown at us which I can understand as they need to get as much background information etc but it gets quite trying when the 3rd or 4th doctor comes in and repeats everything that was asked!! Why don't they read the notes that the very first doctor put on the notes instead of constantly asking us the same questions over and over and its hours before anything productive gets done... Also they always seem to ask me questions about his birth & my pregnancy which to me is strange as it has nothing to do with the matter at hand ?! What does my pregnancy issues have to do with him dehydrating?! And then after answering and explaining every question they then say " its OK we can just read his notes" !

Over the Easter holidays Roo ended up in A & E due to dehydration and needed a line put in...I warned them that Roo hated needles, hated being held down and that he would fight it no matter how poorly …