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Showing posts from April, 2016

Teamwork is important...

When we first started our journey we had a lot of referrals to many different departments to have so many different tests to find a diagnosis. We were warned that it may take some time but they would make sure we had the support and input from various professionals. At the centre of it all at the beginning was the paediatrician. It was them who said "yes there is something wrong with your child and we need to find out what " . They make all the referrals to the different departments and at first I thought how lucky we were that everything about Roo's care was co-ordinated, despite having no overall diagnosis.
Every time we went to see the paediatrician she would spend a long time with us going over everything that's been happening since she last saw us, every appointment was then written in a report which on the back had a huge list of the various names of professionals who were involved in a certain part of Roo's life.


The different professionals Roo is under …

Past, Present & Future...

Past.....
Its funny how much things can change in a year... this time last year I had written this post for Undiagnosed Day and I spoke about how we were still waiting for answers as the years were flying by, how we had so many questions about his future etc... Well shortly after writing this post , I made peace with myself in accepting that Roo is the way he is and if we never found out then at least we still had support for the time being. I think because we have such a great support network (most of the time and some only after a fight) despite his lack of diagnosis that I finally accepted that getting a label wasn't important as I now felt that as long as I had enough support from professionals then we could get through his childhood and felt encouraged by the tiny progresses he was making. I belonged to a fab support group, one of the only kind to actually support and advise parents/carers who were raising children who were "undiagnosed", that group as many of you ar…